A speech I gave at the Leukemia Foundation's "Light the Night" event to give hope to other patients and their carers. I hope that it can help you, in whatever challenges you're facing, as well.
When I was 17 I was diagnosed with leukemia, a deadly blood cancer. This blog is a story of my journey through it all and shows how I've managed to stay happy and healthy to this day. I'm also a medical student - so I hope my experiences from both sides of the doctor patient relationship can inspire you to be the best person you can be. Be sure to subscribe via email and share this to help others!
Showing posts with label My Story. Show all posts
Showing posts with label My Story. Show all posts
Monday, September 30, 2013
Wednesday, July 17, 2013
My story.
"The good news is you're 17 and you have leukemia, but the bad
news is... you're 17 and you have leukemia."
I'd sorta known it was coming. It had been months since I'd felt
right. I'd come home from school and sleep 'til eight. I was off my food. I'd
been getting weaker and weaker, losing my strength and speed week by week
despite training almost 2 hours a day. I'd put it down to exams and stress. But
damn... it was far from that.
Now what? All my - and my parents' - last hopes had extinguished with
the final test; a bone marrow biopsy. It hurts just as bad as it sounds... they
stick a needle through your hip and suck out what's inside. In my case, as a
healthy, strong, near-adult, it took 3 doctors and lots of sweat just to
pierce the bone.
We hoped it was anything else but that 'til that.
My critically low
blood counts? Maybe I had some vitamin deficiencies? My hour long nosebleeds?
It must've been the dry air being expelled from the heaters. Sleeping 16
hours a day? Maybe I was just a slob, or tired from all that studying.
In the
end though... that was all denial.
Questions raced through my
mind...
What had I done to deserve this?
What had caused it?
WHY ME??
I hadn't done anything
bad to anyone as far as I'd known... I was fit, hard working and I ate
healthy.
FOR GOD'S SAKE... I WAS ONLY SEVENTEEN!
Wasn't cancer for old people? Or those
who smoked of something??
Then I asked that final, scary question.
"What are my chances..."
This man I'd met just yesterday glanced at his peers and looked me dead in
the eyes.
"About 10-20% that you'd survive the next five years."
I cried. For ages. No matter how much my parents, nurses and close
friends would try and console me - I wouldn't listen. How could I? I was 17 and
probably wouldn't live to see 21.
What would you do?
I did those things that people don't
know you'd have to do before chemotherapy. A heart scan, lung function test and
lots of blood tests, to get a baseline - chemotherapy apparently affects all
those things. A sperm donation. Apparently it can affect that too.
Amidst all this was the constant messages from everyone - from my
parents, relatives and close friends to nurses - people who'd only known me for
an eight hour shift, max. All told me that it'd all be fine. That I'd be strong
and I'd get through it. One nurse even had the nerve to say that the next few
weeks for me would be filled with pain, vomiting, diarrhea and all kinds of
awfulness. How dare she, when I was at my lowest?? How could she be so cruel?!
I kept questioning their words...
How could they know what I was going through? How could they take away
the fact that I only had a tiny chance of surviving?
But in the end, I had a choice, even if I didn't know it at the time.
I could
stay depressed and down about it all, or I could change.
"The good news is you're 17 and you have leukemia, but the bad news is... you're 17 and you have leukemia."
My critically low blood counts? Maybe I had some vitamin deficiencies? My hour long nosebleeds? It must've been the dry air being expelled from the heaters. Sleeping 16 hours a day? Maybe I was just a slob, or tired from all that studying.
In the end though... that was all denial.
What had I done to deserve this?
What had caused it?
WHY ME??
I hadn't done anything bad to anyone as far as I'd known... I was fit, hard working and I ate healthy.
FOR GOD'S SAKE... I WAS ONLY SEVENTEEN!
Wasn't cancer for old people? Or those
who smoked of something??
"What are my chances..."
"About 10-20% that you'd survive the next five years."
I kept questioning their words...
I could stay depressed and down about it all, or I could change.
That's when I first learnt - there's always a second way to look at things.
Maybe the bad news was that I was seventeen and had leukemia.
But the good news was, I was SEVENTEEN and had leukemia.
But the good news was, I was SEVENTEEN and had leukemia.
Those excuses, those moments of denial that I'd had. Maybe I could see them in another way.
I was young... yeah...
But that only meant I wouldn't have to worry about raising a family, or have to care for myself on my own in the hard moments to come. I had great, funny parents, who'd be willing and able to help me in any way. I had great friends who'd support me the whole way through. I was fit, I ate healthy, and I could eat a LOT - so I wouldn't waste away as some people do during chemo. All that enabled me to get the best possible treatment.
But that only meant I wouldn't have to worry about raising a family, or have to care for myself on my own in the hard moments to come. I had great, funny parents, who'd be willing and able to help me in any way. I had great friends who'd support me the whole way through. I was fit, I ate healthy, and I could eat a LOT - so I wouldn't waste away as some people do during chemo. All that enabled me to get the best possible treatment.
That 10 - 20% was beginning
to look much bigger in my eyes.
I started reading a book given to me by my other. It was about a doctor who'd happened to get bowel cancer. He
witnessed the grief the other patients endured during their treatment, but in
particular, he was struck by how they acted like it was a death sentence. He
asked himself one simple question...
WHY?
Why did they feel down about something they couldn't control? Why were they acting as if they were definitely going to die? Why did they see the treatment as a stall, or something which may prolong life, rather than a cure?
WHY?
Why did they feel down about something they couldn't control? Why were they acting as if they were definitely going to die? Why did they see the treatment as a stall, or something which may prolong life, rather than a cure?
Why was he thinking like them?
By asking why, over and over again, he saw another way of looking at things.... And that made all his doubts, all the obstacles in his path seem like nothing.
Now I could see that I was
young, fit and hence more likely to survive. I was beginning to view the upcoming
chemotherapies and bone marrow transplants as what it really was - A CHANCE OF A CURE, rather
than just something that brought me pain and suffering. And from that nurse who'd told me of the horrible things
I would encounter, I knew it would be hard. But WHY should I succumb to fear and believe that the
treatment being hard and uncomfortable would undermine my survival? Acknowledging the pain that was to come in my journey only meant that I wouldn't give up, even when I was at my lowest.
With that attitude, I KNEW I was going to get better.
And I'm still here. Two years, 6 rounds of chemotherapies, a near fatal dose of radiation and two bone marrow transplants later.
You may be thinking, that's awesome man. Good on you.
But I could never do that.
You may be thinking... that's pretty cool... but how does that affect me?
I want you to ask yourself 1 question.
WHY?
Why wait for cancer, like I did, to live a happier, healthier life?
WHY?
Why wait for cancer, like I did, to live a happier, healthier life?
Those little steps I did, I still apply, whenever I can to life. And it's why I'm always happy and always looking at the better, more constructive way of looking at things.
So, what had cancer taught me?
And how could this help you?
Obviously, my whole battle has changed my view of the world and how to
handle adversity. And you may be thinking that you simply couldn't do those things if you were in my situation, or that you're not strong enough to apply it into your life.
But the major ideas, the things I did to get over cancer are simple ones - THINGS YOU ALREADY DO - which can help you almost accomplish anything you want in life.
You can't get everything you want, you can't cheat death. But they will help your chances along a damn sight. And remember - you will ALWAYS have a choice on how you view your life.
You can't get everything you want, you can't cheat death. But they will help your chances along a damn sight. And remember - you will ALWAYS have a choice on how you view your life.
Sometimes it's just hard to see that.
And there's no reason you should wait to make a change that could change
your life for the better.
A talk I did about my story... that outlines how this can help you guys too!
So Remember:
- There is ALWAYS a second way to look at things.
- If you're doubting yourself or afraid
to do something or afraid of what people are thinking of you... ask yourself
WHY over and over again, until you see a second way of looking at things. Something you can control. Something that may help you get your goals in life or the fact that you always have the choice on how something affects you.
Too often we don't do what we really want to because of the fear of rejection or what others would think. Why do we have to do that? Why should we stop ourselves from enjoying who we are for others when we can disregard them and be happy with ourselves and our choices?
Too often we don't do what we really want to because of the fear of rejection or what others would think. Why do we have to do that? Why should we stop ourselves from enjoying who we are for others when we can disregard them and be happy with ourselves and our choices?
- Acknowledge that the journey to anything will be
hard, and plan ahead to overcome these. But instead of being scared of them, understand that just being able to foresee these challenges makes you more likely to get past them. Because you'll have time to figure them out, you won't be surprised and you won't think you'll fail in the face of adversity, but be MORE LIKELY TO GET PAST THEM.
So, here's a few steps to help you accomplish your goals, or get out of a hard place with these ideas. It doesn't have to relate to sickness like me (though it can) and if you ever need help getting there, post a comment down below or message me on my Facebook Page (I get messages from patients and regular people all the time asking for help or advice - and I'm glad to help).
Step 1 --> Assure yourself you can do it.
Everyone, and I mean EVERYONE, has
something about them that can help them do anything. For me in my battle, it
was that I was young. For others going through the same thing, it could be
their faith, it could be their family, it could be the brilliant, top class
care they're receiving. IT COULD BE ANYTHING AND EVERYONE HAS IT. For someone
who may want to make it to the top of a sport, it could be their speed,
strength or, alternatively, their mind and ability to analyse and act on
situations quickly and efficiently. If you want to make a top school or course
in college or uni, or get a new job or promotion, it could be your ability to
think quickly, your dedication or YOU COULD WORK ON YOURSELF TO HAVE THESE
THINGS, bit by bit.
Remember, there's always a second way to
look at things. So if you can't see something straight away, you will ALWAYS
have, or can ALWAYS develop the characteristics, qualities or skills necessary
to be the best you can be. And no matter how hard times may seem, you can
always bust out of them.
STEP 2 --> Acknowledge the challenges in your way. But plan ahead and know that, because you know they're there, you're
going to blow by them.
So you're full of energy, you're pumped up, you know you can
do it. But don't make that mistake of getting overconfident and wasting your
opportunities because of that, and don't allow your resolve to waver when you find
yourself facing an obstacle.
Life will be hard at times. But only if you make it so.
I knew that the treatment was going to be tough. Excruciating.
Exhausting. But I remembered that in the end, all of this would be left behind
in the past and, also, that modern medicine would be able to ease all suffering.
I knew that I'd have to limit visitors as my immunity decreased during chemos.
But I had facebook, phones and technology to still be able to connect to
people. I knew it would be boring. Technology could fix that too.
For others peoples' goals, challenges may present themselves
as distractions - things like too much gaming or social media or even partying
too much. I should know, I spent almost a month wasting time before beginning
to write this. But after a while of wasting time, ask yourself why? Why am I
having fun scrolling down facebook aimlessly when my real interest is the
beauty I can make from taking and editing photos of nature? Why shouldn't I
enjoy studying maths when I can feel that satisfaction from finding out why I
was going wrong and next time getting those questions right?
If you're trying to lose weight or be healthier, you can
look at it from another perspective. Instead of enjoying downing a box of
Krispy Kremes, think instead about the pain you'd get the next day from the stomach
ache. If you don't like running aimlessly, why do it? Try playing a sport you
like, like basketball for me, or do other things - like playing laser tag or
paintball or even just walking with a friend or a pet for a half hour per day.
The biggest challenge you'll have to acknowlege is your own
laziness, or lack of motivation. You know that on some days you may be lazy,
but remember your goal and all those things you have on your side to help you
achieve it. When you don't feel like doing anything, ask yourself why? Soon
enough you'll be back on target.
Step 3 - Research and
Plan
Before you even begin to lift a weight or do a question or
write a word in a book, you should have an idea of what your actions will do
for your goal and why. Going in blindly or overconfidently into anything will
reduce your chances of success. But if you do your reading, and know where
you're going, you'll get there a lot quicker.
For me, in my battle against cancer, it was easy. I had
doctors who were doing that for me, and they could answer any other questions I
had on my treatment and things like hygiene and what to eat.
But in truth, it's just as easy for anyone.
Don't be afraid to ask someone about something. If you don't
understand how a teacher did a problem, why should you feel stupid for asking
her to explain it to you again? The second, and better way to look at it, is to
ask yourself how much more stupid you would feel when you got the test back and
failed because you couldn't solve a similar problem? If you don't know the best
exercise regime for you, ask a personal trainer. They're big, but they don't
bite.
And if they don't know the answer, you're blessed to live in
today's society - where information or advice can be harnessed from the tap of
a few keys and the clicks of you mouse.
Step 4 --> Do
For me, I just had to sit back, eat as much as possible and maintain
slightly higher levels of hygiene. I already knew I was going to make it - as
will you - and I got to relax all day most of the time.
For your goals, it may be a bit harder, but at the same
time, just as simple.
When you're preparing for that final game of basketball, and
all your research on the other team's players and strategies are done, all
you've got to do is get your body and your team ready to execute moves, shots
and plays. So you shoot your shots. You lift those weights. You run those
sprints. You dribble through cones and cones. If you're in the gym, worried
about looking weak compared to the older kids or bodybuilders, or slow against
the sprinters on the track, don't change your technique to lift more, or worse
yet, give up altogether. Why feel that everyone thinks you're weak, or horrible
at what you're doing when, if you look at it another way, you'll end up in
front of them in time by doing it the right way, consistently? You'd only look
stupid if you hurt yourself by doing it unsafely. Why harm yourself to look
good for others?
And when it finally comes time to that last game, you'll
know that you've done your practice, you've got your teammates, your skills.
You'll acknowledge it won't be easy and that the other team may be good. But
you'll remember you've got everything on your side. And that you won't doubt
yourself on the court because of that. And that you've given yourself the best
chance of winning.
Life is all about giving yourself the best chance to be
happy. And I hope what I've written will help you do that.
A talk I gave on this topic...
I really encourage you guys to share this one amongst your friends/family in particular --> especially with those who are in really tough circumstances. Hopefully it'll help them find a way past their sadness and get back to being their best.
https://www.facebook.com/musingsofamedstudentpatient <-- If you or a loved one needs help, message me here. Same deal if you enjoy my blogs, or if you're interested in medicinish related stuff (don't worry, I don't get too technical and I always keep my blogs user friendly).
A talk I gave on this topic...
https://www.facebook.com/musingsofamedstudentpatient <-- If you or a loved one needs help, message me here. Same deal if you enjoy my blogs, or if you're interested in medicinish related stuff (don't worry, I don't get too technical and I always keep my blogs user friendly).
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