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I guess I have a lot of experience on how it feels to be a
patient. But, if you've read my previous posts about how I managed to remain
happy and positive despite my illness, you may just realise that I view the
suffering of my family - my primary carers - as being much worse than my own.
I mean, I could go through all the hard things associated
with cancer treatment with a smile on my face, knowing that I could still be
happy, and that someday all this will be left behind in my past.
But it'd be a completely different story if that was someone
I knew closely who was lying there on that bed for months on end. The pain, the
angst, the worry and the fact that I couldn't do much about it seems tenfold worse
than anything I went through in my eyes.
What amazed me about my family most was how they managed to
always stay happy and cheerful around me.
The journey up those lifts to my ward every day, worrying
about whether a fever had settled or not yet, wondering why my blood-counts
weren't picking up, all the while juggling bundles of food, blankets and
clothing was hard enough as it was - but to do that and still manage to put on a
smile between the lift doors and my room's - seemed extraordinary.
But, like me and my hilarious encounter with the MaryJohnson, funny little things kept them
sane on those lonely, empty lifts.
I remember, only a few days after starting my treatment, a little
kid, probably the son of another patient, who used to run around the corridors
of the ward every few days. One day - dad invited him to peer through my window
and wave. He was wearing a superman costume - with Clark Kent glasses to match.
It was crazy, it was weird - but that smile as he waved his chubby hands was
more infectious than anything I'd picked up while in hospital.
A few days later, dad came in smiling a little more than
usual.
"What's up?"
"I met Superman again today," he began, chuckling
as he sank into the couch by my bed.
"I was coming up the lifts today and it opened on level
four instead of five. But no-one was coming in. I looked down and there he was,
smiling at me, the cheeky bugger."
"So I looked at him, up and down and he looked back at
me - still smiling. I asked him, 'You pressed the button didn't ya?' And he
just stood there, hands on hip and said 'Nup." And ran away as the door
closed."
It was ridiculous, it was stupid. But damn - just thinking
about that smiling kid made me crack a smile.
More importantly, it made Dad smile.
My stem cell transplant, almost 2 years back now, meant a
transfer to a new hospital - from Liverpool where I had my first few rounds of
chemo to St Vincent's - in the city. It was scary. Not only because it was
dangerous, also because I was getting it in a new place - with new nurses and
new doctors and, more scarily, new complications.
But it wasn't 100% new. I was the first person to stay in my
first room in a new ward in Liverpool hospital - so I got a nicely furnished,
freshly painted and, more importantly, well decked out room with a new,
flat-screen TV. What I was stuck with now for at least a month though was a
smaller, more cramped room with a tiny box of a television that didn't even
show half the channels.
Mum and dad begged the head nurse and ward technician to
allow us to bring in our own TV from home. But we were denied - some technicality
about having to get approval by a government agency before allowing electronics
in hospital rooms (no matter how safe the instrument may be). They asked
around, tried appealing to the electrical department of the hospital and pulled
every string they could - but all to no avail.
One night, the night before I was to start radiation prior
to the transplant, Dad had had enough. I was getting deadly bored in that room,
and as it was my to be my last trip out of hospital for at least a month, so Dad
stashed away our huge 40 inch TV into the boot and drove to St Vincent's at
9:30 pm while I wasn't looking.
I looked on in amazement and burst out laughing as he pulled
the huge thing out of the boot and tucked it - somehow - under his arm.
Ushering me ahead, urging me to hush the whole while, we walked over to the
front entrance, not even blinking as we passed the curious security guard who
let buzzed us through the now closed glass doors.
We waited patiently by the lift as the levels blinked down
towards the ground floor excruciatingly slowly, only just managing to hold in
our laughter until after the lift doors shut. Trying to compose myself and hold back
the laughter as the lift trundled up towards ward 9 south was one of the
hardest things I'd ever done. The short walk to my bedroom , dad sweating
profusely as he held the 40kilogram TV while maintaining a straight face must
have been at least ten times harder.
That thirty second ride with Dad cracking up - to the point
where he almost dropped the damn thing on his feet on two occasions - and me
struggling to smother a giggle that just wouldn't stop was longer than any
biopsy, any training session, any boring lecture in my life. And, surprisingly,
it happened to be on that usually depressing journey to my cell.
And it transformed this hospital room
Into this
Being comfortable really helps making it that much more bearable.
A talk I did in front of THE LIVERPOOL FOOTBALL CLUB about this very story!
And now - to the tale of the mysterious butter lift. Held in
wide regard as a myth by those who know of it, it remains lost to this day.
Unbeknownst previously to this rendition of the tale, though, is the fact that
it does indeed exist.
'Twas said that in the dead of winter of the legendary year
of 2011, sometime before his kinsmen's second battle with the fierce foe of
Chemotherapius, that Nirav, the Brother of the Afflicted, had buried a secret
treasure - unbeknownst to his enemies, the evil Janitorès, somewhere in the depths of
their hideout.
'Twas a stick of the most divine cream purloined by the
Spirits, the most sumptuous, nourishing supplement plucked from the bosom of
Meadow Lea herself and stolen by the knave in a daring raid of their fortunes.
'Tis said, that this marvelous delight, this sweet nectar,
this most perfect stick of butter was sequestered somewhere in the vast reaches
of a particular lift in the Infirmiry that is Liverpool Hospital.
The charlatan, Nirav, did himself tell me of this curious
treasure but a few morns ago, and eagerly I trekked out in search of this
amazing treasure which he insisted still remains unclaimed to this day. Together with a swathe
of young scallywags, I embarked on a journey to find this mysterious rune.
After an eternity of scouring the various lifts of the hospital, I chanced upon
a glimmer of gold and, to my utter surprise, beheld the legendary stick of
butter that had been lost years ago.
It still remains, to this day, hidden in the depths of the
Lifts of Liverpool Hospital, as fresh and pure as the day it was packaged,
preserved and plundered - waiting to be found by those daring enough to try.
Will you be the one to find it?
***
Whenever I'd think about that minute my family spent alone in
the lifts, the sheer stillness and time spent doing nothing but thinking about my struggle seems daunting.
I'd imagine them standing there, brooding about my struggle - maybe even crying
at times. But these little tales with their associated quips, these seemingly trivial occurrences, these
outstandingly odd events just make it seem that little bit more bearable.
And if anyone manages to find that pack of butter - leave a
picture of it in its previous abode and I'll shout you a Subway footlong if it's still there when I have a look...
And it is still there (2 years on). I Checked.
https://www.facebook.com/musingsofamedstudentpatient <-- If you or a loved one needs help or if you enjoy my blogs or if you're interested in medicine, like my page on facebook =]
I have to say that the above is all true.....all were attempts to keep Nik smiling and fighting on and boy he is doing a great job......God bless him and you all readers too.......
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DeleteYou can't get free subways off me dad lol. don't go posting a pic of it haha
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HELLO everyone! Still don’t know the right words to express my Gratitude to the Great Dr IBUKUN After been diagnosed with the HIV VIRUS for the passed 5yesrs, i was given so many health prescription and advice with no
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I am so glad to write this article today to tell the world how Chief Dr
ReplyDeleteLucky cured my HPV virus that have been in my body since five years ago,
ever since then my life has been in complete,i have used so many drugs that
was prescribed to me by several doctors,but it didn't cure my HPV VIRUS
neither did it reduce the pain, i was checking for solution on the internet
then miraculously came across Chief Dr Lucky the powerful herbalist that
cure HPV INFECTION,then i contacted his email, i explained everything to
him and he prepared a herbal cure and send it to me that was how i got
cured from HPV disease totally after receiving his herbal medicine, so my
friends viewers why waiting and be suffering with this HPV virus when there
is someone like Chief Dr Lucky that can cure any disease HIV/ CANCER/
HEPATITIS C VIRUS,HERPES VIRUS,ALS VIRUS.
you can contact his via email:
chiefdrlucky@gmail.com
Whats App or call
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Website : http://chiefdrluckysolutionhome.website2.me/
I am John Danilla from UK( northern ireland), i want to share a
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I was diagnosed of HERPES Virus in 2016 and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including HERPES virus, at first i doubted if it was real but decided to give it a try , when i contact this herbalist via his email and he prepared a HERPES herbal cure and sent it to me via UPS delivery company service, when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 14days of usage, I am now free from the deadly disease called herpes, all thanks to Dr.agege you can rich this great herbal doctor via his email: (dragegeherbalhome@gmail.com) or WhatsApp him +2348110560429
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I want to use this opportunity I have to say a big thanks to Dr Ojabu for getting back my ex husband. I'm Lisa Campbell from England, after 7 years of marriage my husband left me for another woman I did whatever I could to get him back but all I did was in vain I was sad, but I didn't lose hope of getting him back because I had faith in God. So I search online on how to get my husband back, and I came across a post of Dr Ojabu of how he helped a lady to get back her ex, I contacted him and told him the pain I was going through, he told me what to do and I did it, then he casted a love spell for me 48 hours later my husband called me and told me he is sorry for what he did and that he misses me very much, later that day he came back home and beg for my forgiveness, since then our love grew stronger. For the marvelous things Dr Ojabu has done for me it would be unfair for me not to let the whole world know that such a powerful spell caster do live. If you want to get back your ex fast email Dr Ojabu at drojabusolutiontemple@gmail.com or add him up on WhatsApp +2348039177826...
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ReplyDeletedrluckycenter111@gmail.com
Thanks for Enlarging,. my penis sir, you indeed save my marriage...I am really grateful sir. whatsapp number +2348035583954
i am ERIC BRUNT by name. Greetings to every one that is reading this testimony. I have been rejected by my wife after three(3) years of marriage just because another Man had a spell on her and she left me and the kid to suffer. one day when i was reading through the web, i saw a post on how this spell caster on this address AKHERETEMPLE@gmail.com have help a woman to get back her husband and i gave him a reply to his address and he told me that a man had a spell on my wife and he told me that he will help me and after 3 days that i will have my wife back. i believed him and today i am glad to let you all know that this spell caster have the power to bring lovers back. because i am now happy with my wife. Thanks for helping me Dr Akhere contact him on email: AKHERETEMPLE@gmail.com
ReplyDeleteor
call/whatsapp:+2349057261346
i am ERIC BRUNT by name. Greetings to every one that is reading this testimony. I have been rejected by my wife after three(3) years of marriage just because another Man had a spell on her and she left me and the kid to suffer. one day when i was reading through the web, i saw a post on how this spell caster on this address AKHERETEMPLE@gmail.com have help a woman to get back her husband and i gave him a reply to his address and he told me that a man had a spell on my wife and he told me that he will help me and after 3 days that i will have my wife back. i believed him and today i am glad to let you all know that this spell caster have the power to bring lovers back. because i am now happy with my wife. Thanks for helping me Dr Akhere contact him on email: AKHERETEMPLE@gmail.com
or
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Hello, everyone! I,m here to explore blogs and forum about the wonderful and most safe cure for (Herpes Virus).I was positive to the deadly virus called herpes and i lost hope because i was out casted and rejected even by my closet friends.i searched on-line to know and enquirer about cure for Herpes and i read someone testimony on how he was cured from Herpes so i decided to contact the same herbalist because i know that nature has the power to heal everything.i contacted him to know how he can help me and he told me never to worry that he will heal me with the natural herbs from God!after 2 days of contacting him, he told me that the cure has been ready and he sent it to me via DHL and it got to me after 3 days!i used the med as he instructed me (MORNING and EVENING) and i was cured!its really like a dream but i am so happy!thats the reason i decided to also add more comment of Him so that more can be saved just like me!and if you need his help, you can email him on nativehealthclinic@gmail.com, Instagram IG: @dremmanuel2 or whatsapp +2348140073965 I,m neme amber and you can get in touch with me via nemeamber@gmail.com..Contact him for help at Herpes virus HIV/AIDS CANCER COPD BRAIN TUMOR All kind of virus and disease
ReplyDeleteI want to give a testimony on how I got cured from Herpes Virus. Few months back I was having some symptoms . I went to see a doctor and many blood tests were done on me, later on I was told I had Herpes. My doctor told me that there's no cure for Herpes I felt bad, I went online searching for a possible cure for Herpes Virus, I saw a post of Dr Aba a herbal doctor that's helping people get cured from HIV, HEPATITIS B, CANCER e.t.c. I contacted him and told him how I'm feeling and he said his herbal medicine can cure me. He sent me the medicine via UPS delivery service and I received the medicine some days after he sent it, i took the medicine as prescribed by him. Before the completion of the medication the symptoms stopped. I went to the doctor and carried out another blood test, surprisingly I was Negative. I haven't had any symptoms anymore. Dr. Aba is great and you can contact via (drabaherbalcenter@gmail.com) or message him on via whatsApp at +2349050514983
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ReplyDeleteSo some days ago I was on the internet and found a lady complaining of recurrent herpes symptoms and how this has damaged her relationships, also on the post I read about how many people say that herpes has come to stay forever and that there will never be a cure for it. The truth is I am a living proof that there are remedies to herpes, I am 42 this year and I had herpes before and it all went away in 2017 after weeks of having to use a certain herbs medication from an online store naturalherbsremedystore.square.site email ( dr.osojo@gmail.com ), my doctor certified the medicine as good to digest and just not less than 3 weeks of using the herbs. I realized the recurrence symptoms were gone and medical results were carried out and confirmed that I no longer had it.
ReplyDeleteSo to many people who think this particular herbal remedy is fake or it isn't certified, that is not true, I will urge one of you to try it out and let me know the result too. drosojoherbalcure.wixsite.com/ofalldisease
I am now leaving a healthy life after using the herbal medicine to cure myself from herpes, i am now herpes disease free after the application and usage. You can contact him for your herbal medication from via Email Robinsonbuckler11@gmail com. Thanks and God Bless you for your help, referring people with herpes disease to use this herbal remedy__________________________
ReplyDeleteGood for the following
Shingles,
Cold sore,
HPV,
HSV1&2,
Fibroid
Erectile Dysfunction..